“You can imagine the loneliness of having a disease most people have never heard of, has no treatment, and is not being studied by medical researchers,” Julia said. “Through my Gold Award project, I hope to inspire my community to celebrate our differences and to be kind […]
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Thanks in large part to your help and generosity, we were able to take several important steps forward since our first “Slam Dunks for Sam” event in 2016. Specifically, we made significant progress in 3 critical areas: New $100,000 APS Type 1 Research Grant. On Rare Disease […]
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